Showing posts with label cure. Show all posts
Showing posts with label cure. Show all posts

Thursday, July 03, 2014

July is Sarcoma awareness month.

Well it is July again. July is Sarcoma awareness month. Until last July I was "unaware" so to speak! I was diagnosed with a Sarcoma tumor in my thigh last July 29th.


I guess awareness means getting informed. Know the symptoms, check yourself and your children. Because cancer survival is early detection! Also awareness is, getting the word out about this type cancer. Finding a cure, better treatments and detection methods, raising money for people who can't afford treatment, getting support. Knowledge is key!


I am aware! I hope that you don't have to get this diagnosis to make you aware. Make the yellow ribbon as recognisable as the pink ribbon!

Monday, June 02, 2014

If I Can Be Thankful in This Situation . . .

If I Can Be Thankful in This Situation . . .
When you start to focus on things you’re thankful for, it just has a way of transforming your outlook, your attitude, and the whole environment around you

Friday, May 02, 2014

It's my pity party, and I will cry if I want to!

Welcome to my 
pity party. 
No one else invited!

Yes this is my pity party, and I will cry if I want to!
For those of you who don't know what a pity party is, let me explain. 
First when you are hosting a pity party, you are the only guest in attendance. There usually aren’t any balloons or cake. Bummer huh? A pity party is more a state of mind. A place you allow yourself to go to feel sorry for yourself. We like to share our woes hoping other people will want to attend our pity party and feel sorry for us. If we spend too much time at this party we feel worse about the situation that got us there.  I'm not talking about the occasional slump we all go through feeling stress or letting ourselves get overwhelmed my life. I'm talking about the "wallows". "No one loves me, I think I'll go in the yard and eat worms". 
I don't want to say my life is the worse it gets or that my problems are more horrible of difficult than others. We all have our own stories and problems. 
These last 4 plus years have been the worse years for me.
To begin with, My Mother suffered from Alzheimer’s and her decease was advancing rapidly. She no longer recognized me when I went to visit her in her home.
My Husbands step father, my Grandfather and, My Father all passed away in a close time frame.
My step son got a DUI. (I won’t even get into this mess!)
My marriage of 13 years crumbled. This was the beginning of several more years of disclosures and pain.
I had health issues, depression and I lost over 70 pounds in 6 months.
Then had an emergency gall bladder surgery and problems with my pancreas and blood pressure for a few months. I had to be rushed to the ER because I passed out in a convenience store. I landed on a Gatorade display. My head still hurts when I see a bottle of Gatorade.
I had a mental breakdown, and was on a boat load of different antidepressants.
I had to leave my job,
During all this I had to keep my head clear to plan my daughter’s wedding. Something I really wanted to do despite my mental capacity.
I experienced several other deaths including close friends and I lost 2 cats,
Then I was diagnosed with cancer, (needle scratching across record sound here)

Wait there is more,
My Mother became very ill and my brother and I had to admit her to hospice where she later passed away the first week of my radiation treatments.
I had surgery to remove the cancerous tumor and as I mentioned radiation treatment.
9 months later I'm still recovering from radiation and I am being treated for Lymphedema. Radiation treatment on my hip has jumpstarted me into menopause. 
I haven't been able to work for 10 months. 
This was from the end of 2009 to date.

I have spent a fare amount of time by myself at my pity parties. At some point I decided to stop allowing myself to wallow long in this space. I had to start giving myself time limits to cry and feel sorry for myself. Then I had to try to snap myself out of it, pull my big girl pants up and get on with my day.
Some days were easier than others. In the first couple months after learning of my husband’s betrayal I spent most of my days crying and in a state of hopelessness. I would take showers and huddle in the corner on the floor sobbing until the water heater ran out of hot water.  I spent so many days in this state that it became comfortable. Not a good thing!  To make a longer story short, I found help via a 12 step program, friends, family, and therapy. I experienced recovery and healing.

Today I recognized quickly that I was feeling sorry for myself. I felt down and grumpy. I even had some anger deep inside. I recognized this, sat with it for awhile and ding the timer went off. (In my head). I found something to distract me and snap me out of this slump. Today I watered my vegetable garden and flowers. I wrote this blog. Other days I journal or text a friend. This was a healthier response than years ago.
I don’t beat myself up for throwing these pity parties. I’m human and I’m not perfect. I do try to learn from my mistakes.I just tell myself that I snapped myself out of a slump before I can do it again.
I remember years ago when I was going through a divorce from my first husband. I was feeling sorry for myself. I was chatting with another Mom at my daughter’s school telling her my sob story. Her response caught me off guard in fact it kind of pissed me off. She said to me, “You are in charge of your own destiny”.  If you don’t like where you are at or going in your life, change it”.
Ha what a bitch I thought! I smiled and walked away. Vowing to never talk to her again!
I now realize that my reaction to what she said was that of an unstable person. Someone throwing a pity parting and she chose not to attend. It took me years to come to the same conclusion. I am in charge of my own destiny, and if I don’t like where my life is I have to change it. In the 12 step program it says, “If you don’t change, nothing changes”. I concur.
With recovery and growth I realize that I am in charge if my own destiny and I have to make my own Happy!

 

I hope that sharing my story has inspired you to take off that pity party hat, and get living! Make some changes. Your are in control. Live like you were dyeing. 


You can find me out in my garden soaking up the sun. I'm wearing a sun hat these day!


You may also enjoy an older post of mine,



Monday, April 07, 2014

You're in Remission: What Next?

This was an article I read a couple days ago. It really made me stop and think about my own "remission". I don't call it that yet. 

I have experienced many things mentioned in this article. Inability to find my New Normal, fatigue, Survivor guilt, and still healing from treatment. I struggle calling myself a "cancer survivor" because I'm waiting for that other foot to drop.

 I expected to just go back to the old me after treatment. But cancer changes you!

 Im off to journal and blog about this.#stupidcancer





You're in Remission: What Next? - WhatNext:



'via Blog this'

Monday, March 03, 2014

The 2014 Guide to the Sarcoma Universe | For the Newly Diagnosed

The 2014 Guide to the Sarcoma Universe has just been published! http://sarcomahelp.org/newly-diagnosed.html

This expanded and updated "guide for the whole person" helps new patients and their loved ones to understand a sarcoma diagnosis, seek the best care, manage treatment, cope well and find support. It is featured in the latest issue of ESUN.http://sarcomahelp.org/esun.html





The 2014 Guide to the Sarcoma Universe | For the Newly Diagnosed:



#Cancer, #Sarcoma

'via Blog this'

Tuesday, February 11, 2014

Another Rant or vent post; Fighting cancer one moment at a time!


Feeling, "UGH' today. My thigh is swollen and I'm feeling "clammy". I got a Dr's appointment later. But my mind is racing with all the possibilities of why this swelling in this location. Near the lymph nodes.
I usually read cancer support boards for support, but today its painful and scary. Cancer reminds us that we are not invincible. Life is short and we don't always have control of what takes us and when. That feeling of being "out of control" is frightening! I think about how I was living before my diagnosis. I wasn't worried about dying. I went about my life as if I had years  to enjoy my life. Yet I could have been killed in a car crash or had a heart attack at any moment. It happens. We are all dying. But a cancer diagnoses gives you a hint of how you may die, and in some cases a date. Think about that. That's pretty scary!  That hard part is being able to not think about it and live your life. The people I hear about that can are true inspirations! It's easy to say you have to take life "One day at a time". or, "Live like you were dying". But its so hard to live it! Its harder when you're tired and not feeling well. You lose your momentum.
I'm tired of being sick and tired. I tired of going to Kaiser every 2 or 3 days! I want my life back. I want to go to work and make plans for my future. I don't want to have to cancel plans to go to Dr's appointments.  I want to walk my dog without pain. I want people to ask me how I am and not have an answer regarding my cancer. I want to be able to call myself a "survivor". That title is so important to me. It takes such a great level of patients to get there and I don't have a lot these days.
I refer to this as "Cancer the gift that keeps giving". If its not one thing its another. I went from diagnoses and the struggles to have tests and then surgery then to radiation and now the healing. The healing is as difficult as the treatments. A long a slow process.



Now that I have that off my chest, I can see that I have to relax. I have to live in the moment and take this one moment at a time. I am healing slowly. I have come a long way in my treatment. I haven't been given a death sentence so far. I have to stop trying to predict the future and live for today.
What am I grateful for? What are my blessings? How can I live like I was dying, even if its not for many many years?



For all of you who have just lost 5 minutes of your life reading this blog, I ask you a favor.

Live today like you were dying!

because you are!


Friday, September 24, 2010

Alzheimer's SUCKS! My focus is on the Memory Walk this week!

My focus this week will be on the Memory Walk. It ways heavy on my mind because it is all I can do to fight this disease. Raising donations, walking, telling everyone I see about the walk and finding a cure. It is all I can do. Every day I hear a story about someone effected by Alzheimer's. A mother a aunt a Grandfather. The numbers of effected people is staggering! The longer we live the higher the number of patients will be, and more families will have to endure this awful disease. Watching their loved one slowly fade away. 

I lost my Grandfather to Alzheimer's, now I get to watch my mother fade away. It takes years and is painful to watch!

If you are reading this, you can help! Go to the Alzheimer's web site alz.org Find a walk in your area or maybe you have a friend walking. Or you can go to my site and donate there 

http://lnk.ms/C99m2

  

click to donate


If that wont work for you. Start talking about it. The next step is getting the word out. Educating people about this disease. I have heard everything from people thinking it was from aluminum cans to fast foods. I want people to realize that Alzheimer's doesn't stop at taking away your memory, or making you forget where you put your car keys. It takes away your life and a small piece of you loved ones with it! 
It is still not known exactly why some people get it but they are close to pin pointing the cause! This is what I am hoping for in the future. A blood test and then treatment then a cure! 


alz.org



I checked my email and my memory walk web page this morning. I got goose bumps from the generosity from family and friends. I feel I have a good momentum going and I hope I can keep it up for next years also, and the years to come! Go educate yourself and help in any way you can!

 Alzheimer's Sucks!!!!