Well it is July again. July is Sarcoma awareness month. Until last July I was "unaware" so to speak! I was diagnosed with a Sarcoma tumor in my thigh last July 29th.
I guess awareness means getting informed. Know the symptoms, check yourself and your children. Because cancer survival is early detection! Also awareness is, getting the word out about this type cancer. Finding a cure, better treatments and detection methods, raising money for people who can't afford treatment, getting support. Knowledge is key!
I am aware! I hope that you don't have to get this diagnosis to make you aware. Make the yellow ribbon as recognisable as the pink ribbon!
I am a Queen in my own mind! I was diagnosed with Sarcoma cancer 7/2013. Here is my journey.
Showing posts with label BeatCancer. Show all posts
Showing posts with label BeatCancer. Show all posts
Thursday, July 03, 2014
Monday, June 23, 2014
Good news, EPIC news!
I just got the MRI results. trying to type while jumping around!
Drs message read,
"MRI showed NO evidence of recurrent sarcoma. Good news"
Drs message read,
"MRI showed NO evidence of recurrent sarcoma. Good news"
He is a man of little words but he gets to the point! this will mark the second clear MRI since finishing radiation. I feel comfortable to call myself a cancer survivor, finally. My oncologist is also confident it seems as he pushed off the next MRI to 4 months instead of 3. I take that as good.
Monday, June 02, 2014
If I Can Be Thankful in This Situation . . .
If I Can Be Thankful in This Situation . . .
When you start to focus on things you’re thankful for, it just has a way of transforming your outlook, your attitude, and the whole environment around you
When you start to focus on things you’re thankful for, it just has a way of transforming your outlook, your attitude, and the whole environment around you
Friday, May 02, 2014
It's my pity party, and I will cry if I want to!
Welcome to my
pity party.
No one else
invited!
Yes this is my
pity party, and I will cry if I want to!
For those of you who don't know what a
pity party is, let me explain.
First when you are hosting a pity party,
you are the only guest in attendance. There usually aren’t any balloons or
cake. Bummer huh? A pity party is more a state of mind. A place you allow
yourself to go to feel sorry for yourself. We like to share our woes hoping
other people will want to attend our pity party and feel sorry for us. If we
spend too much time at this party we feel worse about the situation that got us
there. I'm not talking about the occasional slump we all go through
feeling stress or letting ourselves get overwhelmed my life. I'm talking about
the "wallows". "No one loves me, I think I'll go in the yard and
eat worms".
I don't want to say my life is the worse it
gets or that my problems are more horrible of difficult than others. We all
have our own stories and problems.
These last 4 plus years have been the
worse years for me.
To begin with, My Mother suffered from Alzheimer’s
and her decease was advancing rapidly. She no longer recognized me when I went
to visit her in her home.
My Husbands step father, my Grandfather and,
My Father all passed away in a close time frame.
My step son got a DUI. (I won’t even get
into this mess!)
My marriage of 13 years crumbled. This was
the beginning of several more years of disclosures and pain.
I had health issues, depression and I lost
over 70 pounds in 6 months.
Then had an emergency gall bladder surgery
and problems with my pancreas and blood pressure for a few months. I had to be rushed
to the ER because I passed out in a convenience store. I landed on a Gatorade display.
My head still hurts when I see a bottle of Gatorade.
I had a mental breakdown, and was on a
boat load of different antidepressants.
I had to leave my job,
During all this I had to keep my head
clear to plan my daughter’s wedding. Something I really wanted to do despite my
mental capacity.
I experienced several other deaths
including close friends and I lost 2 cats,
Then I was diagnosed with cancer, (needle scratching across record sound here)
Wait there is more,
My Mother became very ill and my brother
and I had to admit her to hospice where she later passed away the first week of
my radiation treatments.
I had surgery to remove the cancerous tumor and as I mentioned radiation treatment.
9 months later I'm still recovering from radiation and I am being treated for Lymphedema. Radiation treatment on my hip has jumpstarted me into menopause.
I haven't been able to work for 10 months.
This was from the end of 2009 to date.
I have spent a fare amount of time by
myself at my pity parties. At some point I decided to stop allowing myself to
wallow long in this space. I had to start giving myself time limits to cry and feel
sorry for myself. Then I had to try to snap myself out of it, pull my big girl
pants up and get on with my day.
Some days were easier than others. In the
first couple months after learning of my husband’s betrayal I spent most of my
days crying and in a state of hopelessness. I would take showers and huddle in
the corner on the floor sobbing until the water heater ran out of hot water. I
spent so many days in this state that it became comfortable. Not a good
thing! To make a longer story short, I
found help via a 12 step program, friends, family, and therapy. I experienced recovery
and healing.
Today I recognized quickly that I was
feeling sorry for myself. I felt down and grumpy. I even had some anger deep
inside. I recognized this, sat with it for awhile and ding the timer went off. (In my head). I found something to distract
me and snap me out of this slump. Today I watered my vegetable garden and
flowers. I wrote this blog. Other days I journal or text a friend. This was a healthier
response than years ago.
I don’t beat myself up for throwing these
pity parties. I’m human and I’m not perfect. I do try to learn from my
mistakes.I just tell myself that I snapped myself out of a slump before I can do it again.
I remember years ago when I was going
through a divorce from my first husband. I was feeling sorry for myself. I was
chatting with another Mom at my daughter’s school telling her my sob story. Her
response caught me off guard in fact it kind of pissed me off. She said to me, “You
are in charge of your own destiny”. “If
you don’t like where you are at or going in your life, change it”.
Ha what a bitch I thought! I smiled and walked
away. Vowing to never talk to her again!
I now realize that my reaction to what she
said was that of an unstable person. Someone throwing a pity parting and she
chose not to attend. It took me years to come to the same conclusion. I am in
charge of my own destiny, and if I don’t like where my life is I have to change
it. In the 12 step program it says, “If you don’t change, nothing changes”. I
concur.
With recovery and growth I realize that I am in charge if my own destiny and I have to make my own Happy!
I hope that sharing my story has inspired you to take off that pity party hat, and get living! Make some changes. Your are in control. Live like you were dyeing.
You can find me out in my garden soaking up the sun. I'm wearing a sun hat these day!
You may also enjoy an older post of mine,
Friday, April 18, 2014
Today I am grateful for...
(1) Today I am grateful for...: "Today I am grateful to be able to celebrate another birthday! At my age, I use to shutter at the thought of getting older. But 9 months ago I was diognosed with cancer. Thanks to modern medicine, and the love of God I made it through treatment. My future looks good and today I celebrate!"
Monday, April 07, 2014
You're in Remission: What Next?
This was an article I read a couple days ago. It really made me stop and think about my own "remission". I don't call it that yet.
I have experienced many things mentioned in this article. Inability to find my New Normal, fatigue, Survivor guilt, and still healing from treatment. I struggle calling myself a "cancer survivor" because I'm waiting for that other foot to drop.
I expected to just go back to the old me after treatment. But cancer changes you!
Im off to journal and blog about this.#stupidcancer
You're in Remission: What Next? - WhatNext:
'via Blog this'
I have experienced many things mentioned in this article. Inability to find my New Normal, fatigue, Survivor guilt, and still healing from treatment. I struggle calling myself a "cancer survivor" because I'm waiting for that other foot to drop.
I expected to just go back to the old me after treatment. But cancer changes you!
Im off to journal and blog about this.#stupidcancer
You're in Remission: What Next? - WhatNext:
'via Blog this'
Monday, March 03, 2014
The 2014 Guide to the Sarcoma Universe | For the Newly Diagnosed
The 2014 Guide to the Sarcoma Universe has just been published! http://sarcomahelp.org/ newly-diagnosed.html
This expanded and updated "guide for the whole person" helps new patients and their loved ones to understand a sarcoma diagnosis, seek the best care, manage treatment, cope well and find support. It is featured in the latest issue of ESUN.http://sarcomahelp.org/ esun.html
The 2014 Guide to the Sarcoma Universe | For the Newly Diagnosed:
#Cancer, #Sarcoma
'via Blog this'
This expanded and updated "guide for the whole person" helps new patients and their loved ones to understand a sarcoma diagnosis, seek the best care, manage treatment, cope well and find support. It is featured in the latest issue of ESUN.http://sarcomahelp.org/
The 2014 Guide to the Sarcoma Universe | For the Newly Diagnosed:
#Cancer, #Sarcoma
'via Blog this'
Tuesday, February 11, 2014
Another Rant or vent post; Fighting cancer one moment at a time!
Feeling, "UGH' today. My thigh is swollen and I'm feeling "clammy". I got a Dr's appointment later. But my mind is racing with all the possibilities of why this swelling in this location. Near the lymph nodes.
I usually read cancer support boards for support, but today its painful and scary. Cancer reminds us that we are not invincible. Life is short and we don't always have control of what takes us and when. That feeling of being "out of control" is frightening! I think about how I was living before my diagnosis. I wasn't worried about dying. I went about my life as if I had years to enjoy my life. Yet I could have been killed in a car crash or had a heart attack at any moment. It happens. We are all dying. But a cancer diagnoses gives you a hint of how you may die, and in some cases a date. Think about that. That's pretty scary! That hard part is being able to not think about it and live your life. The people I hear about that can are true inspirations! It's easy to say you have to take life "One day at a time". or, "Live like you were dying". But its so hard to live it! Its harder when you're tired and not feeling well. You lose your momentum.
I'm tired of being sick and tired. I tired of going to Kaiser every 2 or 3 days! I want my life back. I want to go to work and make plans for my future. I don't want to have to cancel plans to go to Dr's appointments. I want to walk my dog without pain. I want people to ask me how I am and not have an answer regarding my cancer. I want to be able to call myself a "survivor". That title is so important to me. It takes such a great level of patients to get there and I don't have a lot these days.
I refer to this as "Cancer the gift that keeps giving". If its not one thing its another. I went from diagnoses and the struggles to have tests and then surgery then to radiation and now the healing. The healing is as difficult as the treatments. A long a slow process.
Now that I have that off my chest, I can see that I have to relax. I have to live in the moment and take this one moment at a time. I am healing slowly. I have come a long way in my treatment. I haven't been given a death sentence so far. I have to stop trying to predict the future and live for today.
What am I grateful for? What are my blessings? How can I live like I was dying, even if its not for many many years?
For all of you who have just lost 5 minutes of your life reading this blog, I ask you a favor.
Live today like you were dying!
because you are!
Saturday, January 18, 2014
Cancer, the gift that keeps on giving.
I need to vent.
Another day dealing with the side affects of cancer treatment. (eff cancer!!)
I have avoided updating my status on Facebook with my day to day struggles with cancer I think because I am avoiding it. I haven't written in my journal or blogged about it.. Avoiding dealing with it. A lil self psychology.
The wound from surgery in August hasn't fully healed due to the radiation treatment last Oct-Nov, done so soon after surgery. Now I have an staff infection in it and I am on the second round of antibiotics. I went to a wound nurse and discussed another possible surgery on the infected spot. It as has been a true challenge trying to bandage my thigh. Picture this, The top of your thigh is larger than the lower part and mine has been burn 3/4 of the way around it. So I cant use tape or any adhesives. I use wrap. Then I walk and it slides off. I wrap more and get creative with pinning to my underwear etc etc,, It slides off. UGH! Now I have to keep it clean and covered, (My Dr says, "Creen" lol he's Chinese). The wound nurse has a special dressing with a cream to soften the area I have to leave on until it heals. AND,, I cant shower for 2-3 days. UGH again!
In the mean time my Oncologist has not been able to a MRI to see if the radiation was able to zap the remaining tumor. So I may still have some cancer in there. AUGH!!
I have been dealing with this since surgery last Aug. I'm ready to move on. I want to take my dog on walks and sit and rest with out discomfort. I am walking better without a cane now. That is good!
There I admitted it! I'm frustrated and I am allowing myself to feel defeated.
I have cancer it doesn't have me. I feel like I'm at my first 12 step meeting.
"My Name is Becca, I have cancer". Hum maybe I touched on my problem. I have to face it!. Defeat it!
THANKS FOR LISTENING I GOT IT OFF MY CHEST! LUV YA!
Another day dealing with the side affects of cancer treatment. (eff cancer!!)
I have avoided updating my status on Facebook with my day to day struggles with cancer I think because I am avoiding it. I haven't written in my journal or blogged about it.. Avoiding dealing with it. A lil self psychology.
The wound from surgery in August hasn't fully healed due to the radiation treatment last Oct-Nov, done so soon after surgery. Now I have an staff infection in it and I am on the second round of antibiotics. I went to a wound nurse and discussed another possible surgery on the infected spot. It as has been a true challenge trying to bandage my thigh. Picture this, The top of your thigh is larger than the lower part and mine has been burn 3/4 of the way around it. So I cant use tape or any adhesives. I use wrap. Then I walk and it slides off. I wrap more and get creative with pinning to my underwear etc etc,, It slides off. UGH! Now I have to keep it clean and covered, (My Dr says, "Creen" lol he's Chinese). The wound nurse has a special dressing with a cream to soften the area I have to leave on until it heals. AND,, I cant shower for 2-3 days. UGH again!
In the mean time my Oncologist has not been able to a MRI to see if the radiation was able to zap the remaining tumor. So I may still have some cancer in there. AUGH!!
I have been dealing with this since surgery last Aug. I'm ready to move on. I want to take my dog on walks and sit and rest with out discomfort. I am walking better without a cane now. That is good!
There I admitted it! I'm frustrated and I am allowing myself to feel defeated.
I have cancer it doesn't have me. I feel like I'm at my first 12 step meeting.
"My Name is Becca, I have cancer". Hum maybe I touched on my problem. I have to face it!. Defeat it!
THANKS FOR LISTENING I GOT IT OFF MY CHEST! LUV YA!
Wednesday, January 01, 2014
Farewell 2013! You will not be missed!
This is not a fond farewell to 2013. This last year has been the most difficult year I can remember!
Wednesday, September 04, 2013
One week since surgery
One week ago today I had my surgery to remove the Sarcoma tumor in my leg. It still sounds weird to say it. I'm trying to wait patiently for the pathology report to see if I am considered cancer free.
This last month has been HELL! Its changed me and made me rethink things. A cancer dx makes you realized what is really important and when you think your life sucks it could get worse!
Appreciate the flicker us mortals call, Life!
#FuckCancer #livelovelaugh #whatdoestkillyamakesyoustronger
Monday, August 12, 2013
Because I'm in the center of the ring and this is about me!
Great read in the Los Angeles Times
How not to say the wrong thing
It works in all kinds of crises – medical, legal, even existential. It's the 'Ring Theory' of kvetching. The first rule is comfort in, dump out.
When Susan had breast cancer, we heard a lot of lame remarks, but our favorite came from one of Susan's colleagues. She wanted, she needed, to visit Susan after the surgery, but Susan didn't feel like having visitors, and she said so. Her colleague's response? "This isn't just about you."
My use of the "F" word offends people.
I have been made aware that SOME people on Facebook are offended by my postings using the "F" word when expressing my hate towards my cancer.
I offered the changing the view my postings or to UNLIKE me. I'm not afraid to loose these friends at this point in my life. I realise the "F" word is harsh and can be offensive What what more appropriate way to use this word than when you have been diagnosed with a cancer that could kill you and has killed thousands every year!
For me the statistics (1,890 die) are my reason to say FUCK CANCER! In fact the word fuck doesn't even describe my anger!
The American Cancer society's for soft tissue sarcomas in the United States for 2013 are (these statistics include both adults and children):
- About 11,410 new soft tissue sarcomas will be diagnosed (6,290 cases in males and 5,120 cases in females).
- 4,390 Americans (2,500 males and 1,890 females) are expected to die of soft tissue sarcomas.
The most common types of sarcoma in adults are malignant fibrous histiocytoma, liposarcoma, and leiomyosarcoma. Certain types are more common in certain areas of the body than others. For example, leiomyosarcomas are the most common abdominal sarcoma, while liposarcomas and malignant fibrous histiocytomas are most common in legs. But pathologists (doctors who specialize in diagnosing cancers by how they look under the microscope), may not always agree on the exact type of sarcoma. Sarcomas of uncertain type are very common.
Mr Lumpy the grumpy Sarcoma is not so photogenic! Fucker!
Friday, August 09, 2013
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